The author describes a harrowing experience in the hospital due to a severe infection and sepsis, which led to a five-day ICU stay and ongoing health struggles related to Myalgic Encephalomyelitis and Postural Orthostatic Tachycardia Syndrome. Despite physical challenges, they express gratitude for life’s moments and reflect on potential recovery and adaptation.

Living with ME/CFS has taught me the importance of pacing myself, finding support, and staying hopeful for the future. While there’s no cure yet, the rise of long COVID is helping to bring greater awareness and research.

Melissa and I have poured our hearts into this story, aiming to address the complexities of chronic illness while celebrating the beautiful moments that make life meaningful. Join us on this journey of love, understanding, and twirling joy!

Living with POTS can be challenging, but it’s important to know that you are not alone. While there is no cure, managing symptoms through hydration, medications, and lifestyle adjustments can make a big difference. Those living with POTS can continue to lead fulfilling lives with the proper support and self care.

I believe we need each other—whether for support, advocacy, or shared understanding. While progress is being made, more research is crucial, and I remain hopeful that one day, we will find a cure for these diseases. Until then, I hold onto my faith, family and the hopes of one day healing.

Parenting while chronically ill is uniquely challenging. As a parent, I’ve always wanted to get it right. But when you have a chronic illness like myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Postural Orthostatic Tachycardia Syndrome (POTS), Cranio-cervical instability (CCI), and Fibromyalgia.